Sunday, April 10, 2016

Back to Life! The beginning....

A lot has happened to me since my last post on August 26, 2014.....

September 9,2014 I was in a medically induced sedated coma... just the beginning. I will try my best to related my current situation now.. but first I digress... I don't remember much or even 2-3 days prior to being in the coma. My last knowledge is that I was feeling well alive and on my way to work.  Based on my other post I have stated that I have Sickle Cell Disease (Sickle cell anemia, or sickle cell disease (SCD), is a genetic disease of the red blood cells (RBCs). Normally RBCs are shaped like discs, which gives them the flexibility to travel through even the smallest blood vessels. However, with this disease, the RBCs have an abnormal crescent (“sickle”) shape.) Well, I believed a crisis from SC Diseased trigger SLE - which the body's immune system mistakenly attacks healthy tissue. It can affect the skin, joints, kidneys, brain, and other organs.


SCD -

  • excessive fatigue or irritability (from anemia)
  • fussiness (in babies)
  • bedwetting (from associated kidney problems)
  • jaundice (yellowing of the eyes and skin)
  • swelling and pain in hands and feet
  • frequent infections
  • chest pain
SLE - 
  • Chest pain when taking a deep breath
  • Fatigue
  • Fever with no other cause
  • General discomfort, uneasiness, or ill feeling (malaise)
  • Hair loss
  • Mouth sores
  • Sensitivity to sunlight
  • Skin rash. A "butterfly" rash in about half people with SLE. The rash is most often seen over the cheeks and bridge of the nose, but can be widespread. It gets worse in sunlight.
  • Swollen lymph nodes
  • Other symptoms depend on which part of the body is affected:
  • Brain and nervous system: headaches, numbness, tingling, seizures, vision problems, personality changes
  • Digestive tract: abdominal pain, nausea, and vomiting
  • Heart: abnormal heart rhythms (arrhythmias)
  • Lung: coughing up blood and difficulty breathing
  • Skin: patchy skin color, fingers that change color when cold (Raynaud phenomenon)
  • Kidney: swelling in the legs, weight gain
The medical staff are still baffled at my recovery, and they were not sure how to treat me or which one was causing the major problems and damage... so over the next few post I will talk about many things, they might not be in order, they might be random feelings, my spirituality, thoughts, daily struggles, occasional observations, my courage, my strengths dealing with each and everyone of these symptoms... but as usual came follow me as I continue to LIVE, LOVE, LAUGH, LEARN!!


Tuesday, August 26, 2014

Reinventing Elizabeth: Knock your husband's socks off this Valentine's Da...

Reinventing Elizabeth: Knock your husband's socks off this Valentine's Da...:  Just to warn you, I'm just going to let myself go in this post.  Throw all caution to the wind.   Why is it a little bit hard for some...

Saturday, August 23, 2014

Leela James - Fall For You

Two weeks later

Consistency! Consistency!

Blogging consistency.... I believe I need a 101 for dummies on this!

So... to continue with the journey - walking didn't go too well with the weather schedule, due to rain and extreme temperatures... then these was nights of cooking that altered eating habits.  Still not too bad on any changes.  This coming week will be a better week without distractions.

Blog about ALS challenges coming.....



Tuesday, August 12, 2014

Digital Detox update plus more!!

So, digital detox has it's lows and highs.... so far the FB is working carbs and sugars not so good.  I guess running around with my nieces and god-daughters we my lows but, on a few days I am able to be more consistent with the no carbs and sugars.

Something I should of posted months ago but hadn't, didn't etc.... I have been having issues with my liver which steamed from my sickle-cell disease (see my sickle cell disease tab) sooo, after almost 5 months a biopsy was done and now I am on Prednisone (steriods) so guess what?... uumm that means weight gain :(  ... Have no fear for the first time in my life I think I am finally going to take the challenge of a healthy eating life style and exercising as a daily routine.  I have gone down that road many many times before each time failing, falling, crashing, plateau and burning.  I am making a blog and journal commitment to see this through the end.... of .... time!  So come along and journey with me....


Day 1 (August 12, 2014)

Breakfast: 6:45-7:00 am
Chia Tea with NO SUGAR - aaahhh pretty good if you ask, I think I can continue this.
2 Hard Boiled eggs

Mid-morning snack 10:30 - 11:00
Snacking on grapes - easy right

Lunch 12:1:30 pm
My smart co-worker (which I love and grateful for) is ordering Papa John's Pizza for the office.  (Long story short, it's Papa John's fault's fault they were 40 mins late getting us Pizza for a meeting last week and now we have $124.00 credit to spend)..... I can't be a party pooper but will watch my pizza in-take.

Afternoon snack 3:00 pm
Baby carrots and peanut butter

Dinner 5:30 - 6:30
Still working on it as I write this blog

Exercise - 2 miles of walking briskly

Snack if I must have one ( glass of Almond milk or Mango)







Wednesday, August 6, 2014

30 -days Digital Detox

Not sure why I did not think of blogging this when I began... but I am going to now.

So I started this 30 - day detox from Facebook, Instant-Gram, Sugars and Carbs... okay so I have not been doing great with the Carbs and sugar.  Took the kids to CeCe's Pizza yesterday and also Chic-fil-a bad choices for me.  Today I am recovering and starting again....

I also wanted to spend more time reading and less time tubing... well last night I actually turned off the TV (aka tube) and listened to music - I really enjoyed that evening off.  I think I can do this.

My new Jam I am feeling:


Tuesday, July 15, 2014

If I was a black girl in love with myself - Author Unknown

In my quest to find love I have failed many times.... Yet recently I came to the realization that in order to find true and healthy love I must first be in love with myself! So I'm starting an empowerment movement to ask one million black women to fall in love with themselves!

If I was a black girl in love with myself
I would need to just sit alone with myself to know myself. I would know that being alone does not mean lonely. I would sit with my fears and try to figure out, why I'm afraid of the dark, scared of silences, terrified of having to sit alone with myself.
If I was a black girl in love with myself
I would choose healthy relationships. One's that help me grow, make me a better person, feeds and nature me. I wouldn't settle for anyone else's husband or man. I wouldn't sign up for partnerships that are physically or emotionally abusive. I would be clear that I deserve better.

If I was a black girl in love with myself
I would choose someone who has fully chosen me. Someone who wants to work shit out with me! He/she desires to wake up with me. Someone who deep belly laughs with me, I would choose someone who makes my tummy flips, who misses me when I leave the room. Someone who encourages me to be a better and kinder person.

If I was a black girl in love with myself
I would actively work on being less critical of myself. I would look in the mirror and not wish you away. Instead, every day I would loudly declare, "I'm going to take care of you! You are beautiful! I'm proud of you! I love you! I love that KINK in your hair your beautiful nose, your wide spread grin, your crooked tooth, that scar on your belly. I would exercise; walk a few steps daily to just honor you! I would not compare you to other woman’s bodies. I would give thanks to God that he gave me another day with you.

If I was a black girl in love with myself
I would spend less money on expensive shoes and more money on therapy. Because I would realize I need to do soul work and not sole work! I need to heal those child hood scares. I need to learn how to forgive all the people who did not do enough to make me feel loved, important, or wanted. Therapy would help me to be ok with asking for what I wanted from my family, my partnerships, my friendships. Therapy would help me deal with the depression that often creeps in leaving me feeling lonely, suicidal and unworthy.

If I was a black girl in love with myself
I would take the time to examine my sista' circle. Do my friendships support unhealthy dynamics of petty jealousies, back biting, subtle put-downs? Am I everybody's super womyn, am I always the shoulder to cry on, am I that "go to girl" and yet there's no place for me to go too?

If I was a black girl in love with myself.
I would question all the spoken and unspoken "TRUTHS" that my mother told me about myself . Did my mother counsel me from a place of fear, anger, hurt, and ignorance? I would lovingly accept that my mother did the best that she could but that doesn't mean that her best is now MY best! I would view my mother in the same loving way that I view myself, as a person who tries but sometimes fails. . I would know that I'm not a replica of my mother or grandmother. I do not have to repeat unhealthy family cycles or dynamics. I would forgive my mother.

If I was a black girl in love with myself.
I would write my father a letter. Mail it to him. Never mail it. I would tell him all the things that I wanted him to do and be for me. I would tell him all the things that he doesn't know about me. I would tell him that even as a grown womyn I still look for him and need him. I would tell him about every super daddy hero story that I created and how he lived up to a few of them but failed me on so many~I would forgive him.

If I was a black girl in love with myself.
I would whisper in my daughter's ear each night how beautiful, smart, creative and amazing she is. I would not publicly shame or embarrass her in order to reprimand her. I would not believe that beating or spanking her is good for her. I would know that sitting with her and explaining right from wrong is better for her tiny soul and body. I would encourage her to disappoint others and me in order to remain true to her spirit, her soul and to herself. I would tell her that no matter what she did I could never stop loving her. I would address in therapy all hidden jealousy, fear, and anger that her tiny presence stirs in me. I would know that these are my issues and are not the burden of my daughter to carry.

If I was a black girl in love with myself
I would cry often. Do big public ugly cries. Allow my tears to flow down my beautiful brown face. Cry because I'm hurt. Cry because I feel joy. Cry because I feel angry. I would not believe that I need to be given something to really cry about! I would know that is safe to say that I'm hurt, it's ok for me to NOT have all the answers. I would know that I don't always need to be strong, in order to carry everyone's hurt and shame on my too small back. I would know it's ok to cry about the sexual secrets that I was told as a young girl to keep. It was not my fault. I give myself permission to cry in my car at a sad song on the radio.

If I was a black girl in love with myself.
I would rest. That doesn't mean I'm lazy or lack ambition. I would light a candle. Read a book. (Perhaps, you can heal your life!) I would do nothing. Sit in my pjs all day. Bake a chocolate cake and share it if I wish, but perhaps eat it all by myself! The world will not fall apart while I rest. I don't need to be completely drained in order to rest. The most loving act I can do is take some time to rest.

If I was a black girl in love with myself.
I would have mini conversations with God/Universe in my bed, in the shower, at my desk at work. I would thank God for everything he has given me. I would ask him to show me a path. I would trust that everything in my life is in divine and perfect order and that God has a plan bigger for me than I could even imagine! I would dream beyond my circumstances!


If I was a black girl in love with myself
I would smile at every black girl regardless of their response to me. I would view them as allies and not my competition! I would cheer on their victories as if they were my own! I would connect amazing black woman with each other and encourage them to get to know each other. I would offer to babysit their kids! I would have potlucks and sista brunches. I would write empowering and loving messages on their facebook pages. I would send them this piece! I would randomly tweet how amazing they are. I would encourage my sista's to be as smart as Michelle, as outspoken as Whoopi, as creative as Shonda, as loving as Oprah, and as wise as Maya. 

I would create safe places for them in my heart. I would send a black girl some flowers just because... and send myself some too!